Tag Archives: ableism

The Grim Reader: Naomi Klein’s Doppleganger

 

Is Doppleganger the right book to add to The Grim Reader series? It has a breadth and scope that is deeply necessary. It is personal. It is political. It gives voice to all kinds of issues from our ecological crisis to rising fascism. So, yes.

On the surface, the book is about the unfortunate mix-ups Naomi Klein has had to endure between herself and Naomi Wolf. Wolf used to be a well regarded feminist academic, but at some point, she took a turn in another direction. The book that brought her widespread attention, The Beauty Myth, was good. Although it didn’t add anything new to the understanding of how beauty is used to hold women back (this was already well trodden ground), Wolf was a new, young, and welcome voice on the scene and gave the argument a new (and beautiful) face. I used her work when I taught Women’s Studies at the college level.

Meanwhile, Klein, became a well known feminist progressive, environmental activist, and political activist. She is the writer behind No Logo and The Shock Doctrine. She tried for years to shrug off the mix ups between the two Naomis. Although harmless at first, as the years wore on, Wolf veered into territory that was anathema to Klein and mix ups became more embarrassing. Over time, Klein became interested in (and possibly obsessed over) how someone like Wolf could change her world views so radically.

Klein’s exploration into Wolf’s transformation brings her to a profound book about mirror images, doubling, or doppleganging. In a way, Doppleganger is a book about how we all contain multitudes. If you’ve ever asked yourself how your Uncle Jim or your mom or someone who you used to know as a great helper-parent in your neighbourhood school or volunteer at the food bank became a FOX News watching, conspiracy-minded, MAGA hat wearing, flag waving, vaccination fearing, Pierre Pollievre supporting, maybe even gun-toting, freedom screaming, convoy supporter, this book is for you. It actually helped me understand how it happens.

I have to admit that even I mixed the two Naomis up, a fact that I am embarrassed about now. I had thought that the incredible foundational error that Wolf made in writing one of her books, Outrages, was an error Klein had made in one of her new books. Oops. But because, in my mistaken mind, it was Klein, I shrugged it off as an “everyone makes mistakes” moment. It did not, to me, change anything about the brilliance of her earlier books, No Logo or The Shock Doctrine. But now that I know it was the other Naomi, can I extend the same grace to Wolf and say that this big mistake she made doesn’t change anything about The Beauty Myth? 

Sure. I guess.

It’s definitely harder because of Wolf’s turn to the right and the new company she keeps, like Steve Bannon. But it is important to give people like Wolf a little grace. How else can they come back?

One of the things Klein finds is that the difference between herself and Wolf and their increasingly divergent ideas is the difference between having a world view that is community oriented versus one that is more individually focussed. As Wolf’s shine wore off, she was all about finding another platform on which she could remain a darling. And find it she did. As a sociologist, I appreciate Klein’s observation that individual goals lead to different outcomes than more community-minded goals. I might even rephrase it to say that the difference between being Naomi Wolf or Naomi Klein is that Klein has a sociological imagination (with thanks to C. Wright Mills) and Wolf does not, or at least, does not anymore.

Klein writes, “These doubles share one thing in common: all are ways of not seeing. Not seeing ourselves clearly (because we are so busy performing an idealized version of ourselves), not seeing one another clearly (because we are so busy projecting what we cannot bear to see about ourselves onto others), and not seeing the world and the connections among us clearly (because we have partitioned ourselves and blocked our vision). I think this, more than anything else, explains the uncanny feeling of our moment in history–with all of its mirrorings, synthetic selves, and manufactured realities. At bottom, it comes down to who and what we cannot bear to see–in our past, in our present, and inthe future racing toward us.” And in ourselves. We all have an authoritarian toddler within us screaming for control. Most of us learn to get past that and live with others in a society working towards mutual benefit.

It is that simple. And that complex. And the road Klein takes herself on to get herself and her readers here is fascinating. Quoting prison abolitionist Mariame Kaba, Klein reminds us “Everything worthwhile is done with other people.” And we are going to have to understand all kinds of people to do anything worthwhile.

On a personal note:

I read Doppleganger while in the midst of a critical health crisis. I started reading it at home, had it with me for a week in the hospital and finished it when I got home again. In that period, I had been told my illness was terminal. Then the doctors found a way to save me. I post this two months later, after three more hospital stays, one of which included open-heart surgery. The fact that I can be (hopefully) cogent again is promising. I have yet one more very difficult surgery ahead and my current hospital stay will not be my last.

All of this is happening in a time when SARS-CoV-2 has been allowed to run rampant, as though it isn’t a killer disease, a disease that can affect every organ of every body, a disease that is chronic for many, a disease that is the source of a mass disabling event. I navigate this while trying to deal with my own non-covid related situation. Mitigations have been dropped in favour of keeping a society looking “normal,” that is, like it is 2019. As though we can choose the changes that happen around us constantly and reject some of them. As though we can keep our heads in the sand.

As of April 8, there is no longer a mask mandate enforced in BC hospitals. Some of my own doctors don’t wear masks and it makes me wonder if I can trust their medical knowledge. But the demands of capital have won out over the needs of sick people. It all became political and public health is now a joke, existing in name only. This is also considered within the pages of Doppleganger.

What’s happening to me personally is life and death. What’s happening to all of us collectively is life and death. The trend towards authoritarianism, the casual eugenics, (well, it’s ONLY those with co-morbidities that are dying, it’s ONLY the frail and elderly, it’s ONLY the disabled) and the genocide(s) taking place across the world are all related. Klein knows this. She looks at Hitler’s Germany, and specifically the life’s work of Hans Asperger who went from being someone trying to help children who were a little different live full lives to someone who was selecting which “disabled” children would die within the Nazi’s genocidal machine. Klein  writes, “Asperger’s jarring career trajectory demonstrates that, in just a handful of years, the same institutions and some of the very same people can shift from an ethos of care and curiosity toward a vulnerable group to one of callousness and genocidal cleansing. As if a switch has been flipped.”

I’ve noticed this with a lot of people throughout the pandemic. So has Klein. The admittedly weak and nascent efforts at community protection we saw in the beginning of 2020 completely turned around. Now wearing a mask or getting a vaccine is thought of as a bad thing by an apparently vast swath of people. Or maybe they are a particularly loud minority. Whoever they are, they have won. Protecting each other is a long-gone ethos. She cites examples of people on the vaccine-feaing, invermectin-promoting side saying the weak should die. And as a person who is now one of the weak, effectively barred from participation in much of society because no one is willing to wear a mask anymore or put any effort or resources into creating cleaner indoor air, I can tell you, it sure feels eugenic to me. As I mentioned above, even my own doctors don’t always wear masks. I’m sure they care about me (at least abstractly) and they have put a lot of their skill and effort into keeping me alive, but they just don’t see how careless they are.

Caring and careless. At the same time. For example, I have no doubt that some of those same people who were banging pots and pans in support of health care workers in early 2020 wouldn’t deign to put a mask on to save the health and life of a health care worker today if they had to go into their doctor’s office or to the hospital. Nor will they wear a mask to save their own life. Or mine. In short, we are “both this and that.”

And this is the key realization of Klein’s opus. Both individual people and even states can be “victim and victimizer at the same time.” One of her most extraordinary and helpful conclusions is that what makes the difference between going “there” and not going “there” is one’s attachment to a sense of community or society and an understanding of class. My sociologist soul rejoices at this conclusion.

Klein writes, “The disability justice advocate and author Beatrice Adler-Bolton refers to the mindset that has animated so much Covid denialism as ‘deaths pulled from the future’–which she defines as the judgement laden posture that frames ‘deaths from Covid-19 as somehow preordained’ because the people doing most of the dying were probably going to die prematurely anyway. Covid just moved up the timelines a few years, so what’s the bid deal?” Klein states clearly, “this is fascist thought. More specifically, it is genocidal thought. It recalls the ways in which colonial massacres were rationalized because within the ranking of human life created by pseudoscientific racists, Indigenous peoples, such as the original residents of Tasmania, were cast as ‘living fossils.’ … Indigenous peoples were, in this telling, the pre-dead, with extermination merely serving to accelerate the inevitable timeline.”

I am not keen on being shunted aside as the pre-dead. I’d appreciate being able to keep every day I might have to experience this troubling body and all of the joy and love it is capable of manifesting.

The planet itself and our eco-systems are disabled now. Our work must be care-based in this “time of planetary shocks and layered disasters.” Our most prevalent state is “chronic impairment,” says disability rights theorist Sunaura Taylor. Klein quotes her saying, “As a disabled person I recognize this as disability… What we live with in the present and will for decades to come, even under the best-case scenario, is mass ecological disablement of the more than human world, a disablement that is utterly entangled with the disablement of human beings. Given this, it seems vital to consider what forms of care, treatment and assistance this age of disability will require.”

On the final page of Doppleganger, Klein writes, “Negotiating that doubling [that is, the doppleganger]–between our younger selves and our older selves, between our public selves and our private selves, between our living selves and our dying selves–is part of what it means to be human.” My living, disabled self has a huge stake in all of it.

This is where Doppleganger lands for me. The mini-thesis inside the bigger thesis is about disability. I am in my age of disability in a world that is already disabled watching another mass disability event play out among humans during the sixth great extinction. I watch these events through wildfire smoke and sometimes through a hospital window. While there are still hospitals. There is something powerful and necessary about facing what’s real. I think constantly about words like accessibility and inclusion. I think about what they mean for me, for the forests. I think about what it means to truly respect every living thing, as it is, to know that it has an inherent purpose all of its own, even when damaged. Naomi Klein is still thinking about this. Her Doppleganger is not.

Read Dopplegnager. Tell me what you think.

 

Travelling in Troubling Times

Fires near Kelowna BC. Photo Credit: The Canadian Press.

British Columbia, the province in which I live, has just issued fire-zone travel bans in response to unprecedented wildfires. Evacuations are underway. Non-emergency vehicles are not needed on the roads while people try to escape to somewhere else.

I wonder: how long will any of us be travelling anymore?

I am disinclined to fly anywhere anymore. At least not for pleasure. (But seriously, the pleasure of flying ended a long time ago. Cramped, uncomfortable seats, intolerable security lines, unexplained delays, and so much more have made flying an experience to get through rather than one to enjoy.) For me, the end of masking made flying dangerous to my health. It’s a grand opportunity to catch SARS-CoV-2. A recent study found over 80% of US flights had Omicron RNA in the wastewater, and the number of people coughing or otherwise visibly ill on the two flights I have taken since the start of the pandemic easily convinced me that flying is a bad idea for me unless absolutely necessary.

I took those two flights wearing a respirator and carrying a personal air purifier.

Me, waiting for a flight in November 2022. Funny/Not funny story. I was in the Air Canada Lounge and this woman not 15 feet away from me was having her snack and complaining to her friend that she didn’t even know why she was eating because she couldn’t taste anything. She said, ”Isn’t that weird?” No. Not so much weird as it is SARS-C0V-2. I moved to the other side of the lounge, where, likely, someone else had it too.

By 2019 standards, I looked ridiculous. By pandemic standards, I look just fine, at least to me. (Although I also look disastrously tired in this photo. It had been a long and difficult trip. And I can tell you, people stared.)

But what has really landed me in my own personal no-fly zone is the climate crisis. One of the half dozen or so truly impactful things I can do to reduce greenhouse gas emissions is to stop flying, or at least stop flying except when absolutely necessary.

What constitutes absolutely necessary? For me, the two air travel trips I have taken since the start of the pandemic were to prevent looming family crises. The thing is, we’ve come of age at a time when it is typical to live far away from family, and I do. Air travel made it possible to live like this and still be involved. Sometimes, I will have to travel by air if we want to be in touch on vital family matters. For me, I have decided this is necessary.

If I’m going, if I’m going to burn up all that carbon, I’ll make the absolute most of it. I combined the first trip with a book tour. To be clear, I would not have taken the book tour to Toronto if there also hadn’t been important family matters to attend to.

A vacation with air travel is a whole other thing. I can’t justify it anymore.

This summer, my partner and I drove our hybrid vehicle on our vacation as we camped and visited friends. Nothing is perfect, you know? Driving is better than flying. But it’s not great. There’s no holier than thou going on here. (One of my new favourite expressions is ”granolier than thou.”) I am by no means the person who lives an exemplary life. Like all of us, I’m struggling to learn how to live in our new pandemicene era. I’m just sharing one of my own personal decisions, a judgement I made for myself—not for others.

It’s a privilege to travel in so many ways, one which I acknowledge and am grateful to have had. I am giving up a privilege. I’m not giving up clean water. But it’s also not like giving up turnips, which I do not like. That would be easy to do. I’m giving up possibility. I’m giving up something with positive associations. It’s been a long journey to first recognize and then deal with the new negative associations. And the airline industry hasn’t helped. I would get daily offers from Air Canada and Aeroplan in my inbox. I finally unsubscribed.

And what about driving? Some of the areas of BC that we travelled through by car this summer are now, just a few weeks later, ablaze. Our road trip did not help. I’m grappling with that. Earlier this summer, I read a news story about planes full of tourists continuing to land in Greece even though the country was in a state of emergency because of wildfires. A sister of a friend is flying to Maui in September. It just feels bad to me. It feels bad for me. It is not something I would do. Again, I make that judgement for myself. I’m not saying no one should ever go to Maui or Greece again. They depend on tourism. Or at least they have until now.

Now it seems they need their resources for themselves. Last November, we drove through the region where Lytton is, and there were signs asking people not to visit. Of course, we did not go there. I get it. No one needs a bunch of lookie-loos. People need to grieve, to regroup, to kick the ashes. And they don’t need me trying to buy a sandwich while they do it.

So, for now, rather than travelling in troubling times, I’ll be staying close to home. I’ll be revelling in the joys of the here and now, in the small pleasures of my glorious neighbourhood. That’s not anything to be upset about.

 

Concussions and Writing: Impact

My long neglected website. Given the lack of attention it receives, a person might be forgiven for thinking I was dead. In the immortal words of Monty Python, I’m not dead yet. But I’ve had to make hard choices about where I spend my writing time. You see, as I started working harder on the concussion book, the concussion symptoms returned. The irony is not lost on me.

My neuropsychologist suggested I did too much. Clearly she’s right. But for the record, I waited three years to take on a project in which others depended on me and deadlines mattered. I did what I was told. I rationed my screen time and my reading time. I added to it slowly. I was careful. I now know that I will never again be able to work long hours. I will never enjoy the satisfaction of working obsessively. I loved working obsessively.

The book is so worth it. No regrets. What I’ve learned from the women contributing to “Impact: The Lives of Women After Concussion” in the last few months has been so consoling. Their insight into our condition (concussion, post concussion syndrome and various levels of traumatic brain injury) exceeds anything I’ve learned from doctors or other health professionals in the last three years. I’m so grateful to them.

I have also had to confront my internalized ableism. Why is it that I have been so very reluctant to classify myself as disabled? Am I entitled to such a classification? Does what happened to me count?

Usually, I pass as a person with a normally functioning brain. (I’m trying not to insert an ableist joke here.) Mostly, I’m glad about passing. It’s easier. For one thing. I don’t want to talk about my issues all the time, although I’m sure some people think I do. Then, I start stuttering again, or wince at a loud noise that no one else notices, or have to flee from a store or busy restaurant, and I feel I need to explain myself.

Why do I think I need to explain myself? I see the difference in myself more than anyone else does. I’m the one who notices. When I had cancer, I could also pass. That is, I could pass until my hair fell out. Once my hair fell out, there was no hiding the fact I was seriously ill. I could wear a wig or a hat, but that was a disguise. With post concussion syndrome, even when I’m doing well, I’m always waiting for the wig to slip. Because my symptoms appear unexpectedly, I am suddenly exposed. I can’t pass anymore. It’s disconcerting. And it happens at the very worst times–times when I’m already stressed and busy. Of course.

So I tried an experiment. I talked about the surge in symptoms. A lot. I was very frank with people. I tried to be as frank as the women whose work I am reading. I tried to get comfortable with it. I can’t say it has worked. Not yet.

***

Impact: The Lives of Women After Concussion is coming mid 2021.*

Addendum: The title of the work changed to Impact: Women Writing After Concussion