Category Archives: First Person

Living is hard work when you’re dying.

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My friend is nearing the end of her life. I owe her so much. She is the person who taught me how to think.

I have so many feelings about it and everyone is worn out, I don’t want to burden the world with this. So, I’ll put it here, in my never read blog.

I was in my 30s when I met her. I foolishly thought it might be too late for me to do something different. She gave me examples of women who had done what I was trying to do, who had done it successfully. She gave me courage. She is whip smart and so generous. She loves to laugh. She loves playing games. She loves good food and fun company. She loves a cause. She loves justice and fights for it. She has the most diverse group of friends of anyone I have ever known. She attracts light.

Now I make her dinner. I am one of many who do this for her. She has a huge network of people who love her and help her, a sure sign of a life well-lived.

But we are in a pandemic. She cannot be with her people like she wants to. We cannot play games together. We see each other with masks on. Her beloved son and grandchildren live far away, in another country. She still cannot get her second vaccine. She is told she has to go to the mass vaccine site she went to for the first. She will need help and a wheelchair. Another friend is helping with this very practical matter. Will it happen in time?

What she wants more than anything is more time. Time with her grandchildren. She wants to hug them. She even wants to hug me and how I would love to hug her back. It is heartbreaking.

What she does not want is sympathy. These days, it is hard not to send it out to her over my mask. She sees it in my eyes. I catch myself. I offer her practical help. This is what she wants from me. So this is what I give. I honour her by doing what she asks of me, and she honours me by asking.

When my mother was dying, right at the very end, I realized I had thought of her as dying while she was still living. We label people as dying too soon. My friend is still living and her life is very hard right now. The grief of this time overflows.

On Languishing in the Pandemic

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Month 13–or is it 14?–of the pandemic, and I am languishing. I did not have that particular word in mind until I read an article about languishing by Adam Grant in the NYT. I had been thinking maybe it was ennui, or maybe disinterest, and was sometimes even wondering if I had become hopelessly lazy.

That’s not it.

I told my husband I was unmotivated, which is true. Confessed it, actually. I am NOT normally an unmotivated person. In his article, Adam Grant says something about being indifferent to indifference and that feels right. I am indifferent to my indifference, disinterested in my disinterest. Maybe you feel the same.

I know I’m lucky. I can work from home and shelter where I am, relatively safe. I get groceries delivered. I am grateful to all of the workers who are keeping us all going and I advocate for their safety literally every day.

Part of it is certainly that while the world celebrates the arrival of vaccines (as do I), Ontario is worse off than ever because of a feckless provincial government. We have higher case numbers than ever and our ICUs are overflowing. Refrigerator morgue trucks are next. It didn’t have to be this way.

So, I try to focus on what I can control. I have a new project on the go. But I am not writing much now. My concentration is poor. It’s also my fifth crashiversary this week, which doesn’t help. Five years of brain injury. My lack of concentration isn’t just about the pandemic. I have been in some state of languishing for a while.

And even if my writing is stalled, there is other work to do. As two projects make their way through to publication, they need bits of my attention. I will get a galley to proof next week. There are questions about marketing. A plan must be made.

I have other projects I could pick up outside of work, things I would usually enjoy. I have wool enough to make six hats which I planned on giving as gifts next Christmas. I need to sew the collar on a summer shirt I am making (polka dots!) and then it will be done. Maybe ten minutes of work. It is sitting beside the sewing machine. Languishing. I could make an interesting dinner. Or I could just scramble a few eggs. I could go for a walk. There are people in my life to care for. Some of them are also languishing and how can I support them when I am too? A birthday cake must be baked. Doing things for others is usually something that cheers me up. The ingredients are all on my kitchen counter, waiting. My seedlings need replanting. The tomatoes are growing well, if a little spindly. Some of them are just lying down, like I want to. I have to stake them up with bamboo skewers.

Meh.

I need a bamboo skewer for me. What will that be? Sometimes, admitting you have a problem is the first step.

This is a “fake it till you make it” time if there ever was one. Time to fake some enthusiasm. Fake a sense of flourishing. As my character Alden often says to herself in Patterson House, “Buck up.” Wish me luck. I wish you luck too. We can do it.

Rosie the Riveter
Rosie the Riveter saying “We Can Do It”

Maybe I’ll have a nap first.

Begin Again

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In my meditation today, I was reminded that when my mind wanders, I can begin again. Focus on the breath. Begin again.

We can always begin again. 

Today is a good day to think about that.

What could we do?

It starts with story. We must know our own story.

We must tell the truth about what happened to us.

We could understand that we are all in this together, that the success of one is the success of all, and not just for humans.

We could devote ourselves to an ethics of care and compassion, to kindness to self and others, knowing that others are connected to us, and we to them, in profound ways. 

We could be humble and acknowledge what we have broken and our own brokenness. We could grieve for what we have lost, because we know that we have lost so much. We are not even sure what it is. But we know. We feel it. It exists as a hollowness in our soul that no amount of food or alcohol or consumer goods or anything else can fill.

We could help each other through the grief.

We could repair what is broken. We could make it our work.

We are ALL in this together: the humans, the trees, the plants, the insects, the air, the animals, the soil, the water, and even the rocks. Even the rocks.

We could build an economy that knows that the earth is not merely a resource for humans to use (up), but a part of us as we are a part of it. The earth’s health is our health. It gives and gives and we, the humans, must stop taking so much.

We could remove the barriers to sharing what we do take.  

We  could build an economy that acknowledges limits. 

It could be beautiful.

Think of what you would begin again, if you could, and know that you can. 

Winter Solstice 2020

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These are dark days. The shortest day of the pandemic feels like the longest.


My sister came over to drop off gifts on the porch and she could not stop crying. She was crying when she arrived, cried through her five minute stop and was crying when she left. My daughter visited on a layover as she travelled across the country to do her shift at the mine. We went for a walk in the damp and cold, stayed outside until we were too cold to be outside anymore, and then she was off again to continue her journey to her work site. Instead of lamenting that I could not hug either of them, or even get close to them, or see their faces through their masks, I tried hard to be grateful I got to see them at all. And I am. But at the end of the day, I cried too. 

This pandemic. It’s hard. It’s a good time for crying. The tears keep coming. 

Gratitude in 2020

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Gratitude? In 2020? This year of disruption and staggering losses? Yes.

The Humber River, Toronto, a view from one of my regular walks that inspires gratitude.

I’m grateful:

1. For Clarity. My vision is 20/20. I know what matters. People. Community. Love. And the earth which supports it all. And I know what doesn’t matter. Whether my hair is cut. Things. Productivity and other cudgels of capitalism. Just as I was wondering if humanity is doomed, I got to witness how we can change our collective priorities quickly.

2. For People. I am grateful for family, thick and thin friends, the kindness of strangers, neighbours, delivery people, doctors, nurses, teachers…everyone. I am grateful for the enthusiasms of my community and the skills and talents they have shared throughout the year.

3. For Slowness. I have a brain injury, and I have required a slower pace since 2016. In the before-time, I fought this need. I thought it was something I had to change. I thought that regaining my old pace was a goal and would be a mark of my recovery. Not anymore. I have learned to embrace my slow pace. It’s a relief. In part, I have been able to do this because everyone else had to slow down too.

4. For Solitude. I miss my people. (See 2.) But. (See 3.) I can do things AND be alone. While others complain about life on Zoom, for me (and many other people with disabilities) Zoom means accessibility. I can participate while not having to negotiate so many other things. I can lower the volume, focus on a single speaker, dim the brightness. Sure, real life is better. But having something is better than nothing, and I am grateful for everything I have been able to participate in because of Zoom. I can only hope that when this is over, the avenues of access that have opened so the able-bodied and neurotypical can carry on will remain open for the rest of us. Will every literary festival make on-line access possible? Will readings still be on line? Will I be able to listen to a concert on line or see a show? I hope so.

5. For Breath. Breath is life. The virus makes breathing a struggle and even takes it away. There has been so much death. I have struggled for breath before. I don’t take it for granted. A quarter century of meditation practice has blossomed in this time. Whatever is happening in me and around me, I am here, breathing. When anxiety or worry threaten to overwhelm, I know that some seed of me, some essence of me, is fine. I am breathing. I am fine. 

6. For Conservation. Or whatever the opposite of consumerism is. I am grateful for getting by with what I have. For making do. For repairing things. It is a better way to live. I will never go back. 

7. For Health. This is more than being grateful I have been spared this terrible virus to date. With life so much smaller, I have tended to my health, my total health, in a more focussed way. I have established a new fitness routine. I walk more. I pay attention to what my body and mind need. I am more focussed on health and wellness than ever before.

8. For Support. Whether you call it cooperation, mutual aid, friendship, or neighbourliness, I have been nourished by it this year.

9. For Gratitude. Yes, I am grateful for gratitude. When I’m feeling overwhelmed, I reach for it. It brings me into the present and changes my perspective.

Like you, I’m hoping 2021 is better. But 2020 taught me important lessons. I don’t want to forget them.

 

Finding Joy Even Though Winter is Coming

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Not to be all “Game of Thrones” or anything, but winter really is coming. It is unlikely there will be dragons, but if 2020 has taught us anything, there will be SOMETHING. I’m hoping it won’t be another four years of the orange menace, and certainly not another four years of the pandemic. I’m weary of them both. Weary and wary. Wary of my weariness. Weary of my wariness. I’d like to go through 24 hours without thinking something is out to do us all in.

Do you have a plan to get through the winter? Something you are doing to help you find joy? I do and I’m sharing. Maybe it will give you ideas.

  1. I’m being rigid about my schedule. It’s not a fancy schedule and includes blocks of time for exercise, work, and food prep. Yes, food prep. We’ve got to keep our strength up and eat well. And delicious food is still something that brings me joy, even if I have to make it myself (which also explains the exercise block.) If I keep my activities in specific blocks, I keep some variety in my day. I can’t work all the time anymore like I used to, (brain injury) and that’s a good thing. But I think a lot of people newly working from home are reporting that they work ALL THE TIME. Let yourself stop and move on to something else.
  2. I get up early and go to bed early.
  3. I meditate every day. I’ve been meditating for decades, but never with this much dedication. I think I’m starting to get the hang of it.
  4. I have stopped drinking alcohol. I actually stopped a long time ago, (brain injury), but I think it is worth mentioning. It’s a depressant. I miss it sometimes, but I have more joy without it. Sometimes, I take a sip of my husband’s drink if it is a really nice smelling wine or a good bourbon. Just a sip. Although it was hard while there were still opportunities for social interaction, it’s not hard now. If you’ve been thinking about it, maybe this is a good time to experiment. Maybe it will bring you joy.
  5. I have cleaned my closet, sock drawer, etc., and edited out worn, horrible or ill-fitting clothes. Again, they are a depressant, at least to me. If I can’t wear that thing I used to slob around in on the rare days I slobbed around, I won’t wear it. I have to choose something better, and I feel better.
  6. I go for a walk every day. My longest regular walk is about 8.5 km and my shortest is to the store and back (about 15 minutes). No matter what, I get outside. I think about what I’m seeing. I look for beauty. A bird, the changing leaves, someone in a nice coat. It’s there. Pay attention.
  7. I try to be helpful to others. I check in with people who are alone. I drop baking off with a neighbour. I write cards and send them to people. This is one of my favourites. It involves several enjoyable steps. a) I have to order cards from a stationery store. I love stationery stores, even on line. My favourite is The Regional Assembly of Text in East Vancouver. I have one closer to me that I really like too, called Take Note, in the Junction. Since I don’t physically go to many stores anymore, it doesn’t matter where a store is. But I try to buy from independent retailers. b) I have to go through my address book and think about everyone and who I haven’t been in contact with lately. c) I have to compose something lively and smart. (It’s a goal, anyway.) It makes me feel better and I love thinking of them receiving the card in the mail, opening it and laughing. d) I have to walk to the post box. (see 6.)
  8. I have projects unrelated to work. For example, early in the pandemic, I dug up everything I have related to knitting. I found half finished mittens, a sweater I started in 1996, and more wool than I imagined I had. So I’m knitting. I’m thinking about breaking into crochet. I have an idea of taking a beautiful landscape photograph, using the app “Bricks” to pixelate it, (Bricks makes everything look like it is made out of Lego) and creating a colour blocked pattern so I can crochet one small square at a time and not get overwhelmed. Then I could put it together like a quilt. If that half a sweater I dug up is any indication, I might finish it by 2040. Crazy as it seems, looking ahead on a project like that makes me feel better. There is a future.
  9. I haven’t given up on getting better from my brain injury. While I think I’ve run my course with what professionals can do to help me, they say time heals. And I have time, all the gods and goddesses willing, and I notice small, incremental improvements, especially in my balance (see #1 and exercise). And these improvements bring me joy. Is there something you can work on improving in your life?
  10. I limit my intake of news and social media. It’s too much. But at least weekly, I take positive action on a change I want to see in the world. I write a politician, I sign a petition, I learn more about a problem that seems insurmountable, not from the news but from a longform article or book or documentary, and I find reasons for hope and learn about other actions I can take.

Happy Winter! It’s going to be ok. This does not have to be the winter of our discontent. We’ll get through this.