Tag Archives: Traumatic Brain Injury

Impact wins Trade Non-Fiction Book of the Year

We are thrilled that Impact: Women Writing After Concussion has won the BPAA’s Trade Non-Fiction Book of the Year! It was a highly competitive category with four other exceptional books shortlisted. Any one of us could have won and it’s truly an honour to be in such good company. Here is a look at the shortlist.

Thank you to the BPAA and to the jury. We also thank all of our contributors who bared their souls in Impact. I am grateful, as always, to my friend and colleague and co-editor, Elaine Morin. Our thanks also go to the University of Alberta Press who believed in this book from the moment the proposal first crossed their path.

Finally I thank our many readers who have taken the time to contact us and tell us what Impact means to them. There is nothing better than getting these notes. As more people face neurological problems as a result of Covid, I fear that Impact will become even more relevant. I can’t say all brain fog is the same, but there are similarities and I think we can help each other.

What I have learned through this experience is no matter what is going on for you, you are not alone. There is always a community that can help you. I really believe that.

Upcoming Event in Victoria about Impact: Women Writing After Concussion

Cover of Impact: Women Writing After Concussion

Save the date! September 13 at 7pm, Tracy Wai de Boer and I will be at Books and Shenanigans 347 Cook Street, Victoria BC in conversation with Susan Olding about Impact: Women Writing After Concussion.

Tracy and I will both be reading from our work in the anthology and we are looking forward to a great conversation with both Susan Olding and the audience! Susan is a wonderful memoirist and non-fiction writer—a perfect person to talk about this anthology.

Coincidentally, Susan Olding’s most recent book, Big Reader, is short-listed along with Impact for the Book Publishers Association of Alberta’s Trade Non Fiction Book of the Year.

The awards will be given out September 16 in Calgary, just a few days after our event.

Please join us. Many thanks to Books and Shenanigans for hosting.

IMPACT shortlisted for Book Publishers Association of Alberta Trade Non-Fiction Book of the Year

Cover of Impact

What a great headline: Impact: Women Writing After Concussion is shortlisted for the Book Publishers Association of Alberta Trade Non-Fiction Book of the Year! Thank you to BPAA for this honour.

E. D. Morin and I are grateful to all of our contributors, to the University of Alberta Press, and to everyone who is part of getting this book out into the world.

We are also thrilled to see that Alan Brownoff is nominated in the category of Book Cover Design for his excellent work on Impact.

Celebrate!

Celebrate, by Kool and the Gang GIF

Launch Day! Impact: Women Writing After Concussion

It’s a big day. Impact is going out into the world after years of work. It carries with it the hearts of 21 writers who share what their lives are like after their concussions and traumatic brain injuries. I am so grateful to each and every writer who made this book possible and offer special thanks to my co-editor, E. D. Morin. I could not have a better partner in this work.

Our thanks also go out to the Canada Council for the Arts for supporting the creation of this work and the University of Alberta Press who believed in it and have done so much to make this dream come true.

Join us for our launch tonight if you can. It will be recorded and available on the University of Alberta Press website.

Also please view and share our videos about the project. They are amazing and another labour of love by the participating writers and by our film editor, Junyeong Kim.

 

Concussions and Writing: Impact

My long neglected website. Given the lack of attention it receives, a person might be forgiven for thinking I was dead. In the immortal words of Monty Python, I’m not dead yet. But I’ve had to make hard choices about where I spend my writing time. You see, as I started working harder on the concussion book, the concussion symptoms returned. The irony is not lost on me.

My neuropsychologist suggested I did too much. Clearly she’s right. But for the record, I waited three years to take on a project in which others depended on me and deadlines mattered. I did what I was told. I rationed my screen time and my reading time. I added to it slowly. I was careful. I now know that I will never again be able to work long hours. I will never enjoy the satisfaction of working obsessively. I loved working obsessively.

The book is so worth it. No regrets. What I’ve learned from the women contributing to “Impact: The Lives of Women After Concussion” in the last few months has been so consoling. Their insight into our condition (concussion, post concussion syndrome and various levels of traumatic brain injury) exceeds anything I’ve learned from doctors or other health professionals in the last three years. I’m so grateful to them.

I have also had to confront my internalized ableism. Why is it that I have been so very reluctant to classify myself as disabled? Am I entitled to such a classification? Does what happened to me count?

Usually, I pass as a person with a normally functioning brain. (I’m trying not to insert an ableist joke here.) Mostly, I’m glad about passing. It’s easier. For one thing. I don’t want to talk about my issues all the time, although I’m sure some people think I do. Then, I start stuttering again, or wince at a loud noise that no one else notices, or have to flee from a store or busy restaurant, and I feel I need to explain myself.

Why do I think I need to explain myself? I see the difference in myself more than anyone else does. I’m the one who notices. When I had cancer, I could also pass. That is, I could pass until my hair fell out. Once my hair fell out, there was no hiding the fact I was seriously ill. I could wear a wig or a hat, but that was a disguise. With post concussion syndrome, even when I’m doing well, I’m always waiting for the wig to slip. Because my symptoms appear unexpectedly, I am suddenly exposed. I can’t pass anymore. It’s disconcerting. And it happens at the very worst times–times when I’m already stressed and busy. Of course.

So I tried an experiment. I talked about the surge in symptoms. A lot. I was very frank with people. I tried to be as frank as the women whose work I am reading. I tried to get comfortable with it. I can’t say it has worked. Not yet.

***

Impact: The Lives of Women After Concussion is coming mid 2021.*

Addendum: The title of the work changed to Impact: Women Writing After Concussion

Recovery, Reframing, and Gratitude for 2018

Happy New Year. 2018 will be the year I recover from this concussion. I know, I know.  I said the same in 2017, and that came and went in a concussed fog. Don’t make promises you can’t keep, says someone in the back of my rattled brain. I’m ignoring that person, choosing optimism and saying this will be the year.

When this happened, way back in 2016, I couldn’t have imagined the time between then and now. My former GP told me dismissively that I would recover in three weeks. So I pretended I was fine and tried to carry on. I pushed and pushed until I couldn’t anymore. I remember thinking, “What is wrong with me?” and going into a blind panic amid the clangour.

What does recovery even mean? It’s a process, not a destination. I know now that it does not mean I will be like I was. There’s no going back. Time only moves forward, and so must I. But I will be something else, somebody closer to normal (whatever that is), somebody who doesn’t worry about falling sideways in the supermarket. I hope I’m somebody who can read quickly and deeply again, who can assimilate information, who can remember, who can write creatively, who can think creatively, who can understand a metaphor, who can ride a bike. I hope I am all of those things. And more. I hope I sleep soundly again.

I have been negative about 2017. The lost year, I call it. But it is time for a reframing. I accomplished something. I pursued my recovery. I followed up every lead on practitioners and treatment and completed every treatment plan given to me. I did puzzles and mazes and built with blocks meant for six-year-olds. I memorized patterns and tested my memory in thirty second intervals and two minute intervals and now a little longer than even two minutes. I filled in the pages of cognitive treatment work books. I budgeted my energy, learning over and over from my mistakes. I wore special glasses and eye patches and learned to see again and to focus and refocus close up and in the distance and every point in between. I regained my lost peripheral vision. And I read, doggedly, even when I couldn’t read, even when I had to use a ruler to follow the lines, even when the words swam on the page and pretended to be words they were not. I read something (anything) every day because I knew that to get my life back, I had to be able to read. And I wrote, little bits, tiny posts on social media, or here on my website. They took forever, but I tried to keep my hand in it any way I could. I launched a book, which I could not have done without Elaine (dear Elaine) but it got done. And then after my brain learned to understand my eyes again, I went to driver rehabilitation and got the go-ahead to drive. I still have huge anxiety in the car, but being told that I have the cognitive capacity to drive is a big step forward.

Creative writing is still elusive. The novel, almost finished in January 2016, remains where it was. Novels are big, you know? There’s so much to remember. So much logic and sequencing and so many words, words, words. Reading remains the second-most difficult task I have. To write, I have to be able to read. They are inseparable tasks. I acknowledge that there is improvement. I don’t need a ruler anymore. The words don’t jump around. I can read for twenty minutes or more most days without getting a headache. I still mix up meanings sometimes. I’m still extremely literal. But it is so much better than it was. Now I’m concentrating on concentrating, trying to build my capacity again.

I had (and continue to have) help. Lots of it. I heap special praise upon my neuro-optometrist, who really, truly, listened to what I was experiencing and didn’t look at me like I was crazy. She had seen this before. It was real. I was so grateful. I have a wonderful new GP, who, although she sees a thousand patients, is always able to make me feel like she has time for me. And I don’t want to forget the massage therapists and physiotherapists, a naturopath, a neuro-psychologist, an occupational therapist and a lawyer who helped me navigate the insurance and the crap I need to do to pay for it all. I thank them all.

I spent too much of my time in 2016 and early 2017 pretending I was fine. I wasn’t honest about how difficult it was to see friends or go on a simple outing. Some friends, close friends, knew and understood. They saw me cry, saw me fall apart, saw me have to disappear for a sleep like a cranky toddler. Thank you. People I know who face chronic illness gave me words and insight that helped. I can’t remember the past twenty months closely enough to give you all proper attribution. You know who you are and I am so grateful to you.

I am so grateful for my husband, whose life has also been curtailed by my brain injury. He has been patient and kind and encouraging. My daughter has too. She also had a big injury in 2016 and she was my recovery buddy for a long time. She’s all better now. She visited for the holidays and one day when I was out with these two cherished souls, I completely lost my equilibrium. My world slid down and to the right where I could not make sense of it. It lasted a long time. Too long. It’s a worry. But there they were, unconcerned about abandoning our plans and ready to take me home instead. It’s good to have people in your life who are with you, no matter what.

And I’m grateful for social media too and the friends I connect with there. Last January was a terrible time for me. I was standing at the edge of the abyss. I fought it back. I cannot overstate the value of social media in helping me back away from the darkness. It allowed me to connect with people without actually having to deal with, well, people, and noise and light. It kept me tethered to the world. To all of you who have sent along an encouraging word, thank you.

So here’s to reframing, to 2018, to health, to family, and to friends.

For the record, I started this post January 1 and it is now January 3. Good God. How can it take this long? Oh yes. Reframing. What matters is I could do it at all. I’m grateful.