Tag Archives: Gratitude

An open letter to my health care providers: you are irreplaceable.

As you know, I’m in a health crisis. You are one of many professionals who are applying their skills, expertise, experience, and knowledge to helping me get through this. I appreciate you more than words can convey. Your care is the difference between life and death for me.
And I’m worried about you.
Many of you are not taking the pandemic seriously. You act like it is over and talk about it in the past tense. Covid, that is SARS-CoV-2, is a Level 3 biohazard, like tuberculosis. It is spread through the air like smoke. Once you get it, it often presents as a cold or flu, but it is so much more. It is a vascular disease. It potentially affects every part of your body, every organ (including your brain), your blood, and your immune system. It has long-lasting effects that we are only beginning to understand. There are a plethora of peer reviewed studies examining the harm that Covid can cause. For years now, some have suggested Long Covid could be a mass disabling event. It already is. Over three million Canadians have already experienced symptoms of Long Covid. Many people with Long Covid cannot work. The first major study of doctors with Long Covid in Britain reveals it has impacted the respondents’ ability to work and to carry out regular day-to-day activities. Almost one in five said they were no longer able to work because of their post-covid ill-health.
You are around sick people all the time. I urge you to wear a good mask, that is, a respirator. Yes, it would help me, but again, I am also worried about you. You are so important. So few people can do what you do. It takes years of training and practice and hard work. You studied for years to be able to do this. Your knowledge is so needed right now. And you are irreplaceable. Irreplaceable.
I have conversations with those of you who are obviously dedicated to protecting yourselves from Covid. You wear respirators and some of you wear face shields too. I appreciate the care you are taking. Some of you only work nights now or take only occasional shifts. Some of you have left full time employment. This is a huge loss for those of us who need you, but I understand. And I support you. It is safer. As one of you said, you have to protect yourself and your family.
Some of you wear the masks that your employer provides. They are better than nothing, and I appreciate the effort. But often they are not N95. They are not respirators. Maybe your employer, the health region, the hospital, the doctor’s practice, could provide better respirators.
Even though in my region, there is currently a mask mandate in all patient areas in hospitals, everyone behaves differently. Some of you introduce yourself and take a breath, peel off your mask for a second so I can see your face, and put your mask back on. I understand why you are doing that, but you don’t have to. I can see what’s going on in your eyes.
Some of you, particularly those at intake desks, still think being behind a clear plastic barrier is enough. It is not. Air travels over, under, and around these barriers and Covid travels in the air.
Some of you pull down your mask when we get into an important conversation, a life and death conversation, or when you are trying to make sure I understand you. Don’t worry: I can understand you through your mask.
Some of you wear masks in the hospital but not in your offices.
Some of you don’t wear them at all.
Masking is a vital part of infection control. It is a vital part of protecting yourself.
You are irreplaceable to me, as your patient, and to your other patients. There is no one else who knows what you know the way that you know it. No one else has your exact experience.
You are even more irreplaceable to your families and your loved ones. Irreplaceable.
I’m going to say something wild here: I love you. All of you. Even the bossy nurse whose poor mask wearing set the tone for the rest of the medical staff in that unit and left everyone less safe. Even you. You obviously have skills. You were the one who got everyone’s questions. You were the one who knew how everything worked. You are so important. We can’t lose you. Please, wear a mask. You are needed. You are irreplaceable. You are loved.
With gratitude and respect,
Your patient,
Jane

Patterson House a Calgary Bestseller

Thanks so much to the Calgary writing community and readers for making Patterson House a bestseller two weeks in a row and for pushing it to the #1 spot this week.

I started Patterson House in Calgary. Both me and the book were nurtured by a whole bunch of writing classes and teachers. I took classes through Continuing Ed at the University. I went to a women’s writing week at U of A too which was excellent. Inge Trueman’s writing group and several writing retreats at Strawberry Creek (thanks Brenda, Tena and Rudy Weibe, and Astrid Blodgett and the Alberta Writers’ Guild) helped me too. And I had a really good week at Banff with Joan Clark as my mentor. There are many other Alberta-centric writing experiences too! I got to try sections out because Rona Altrows and others hosted ”Writing in the Works,” which allowed writers like me to read in public, and test the reception of work in progress. Such a gift!

Thank you Calgary!

 

Gratitude in 2020

Gratitude? In 2020? This year of disruption and staggering losses? Yes.

The Humber River, Toronto, a view from one of my regular walks that inspires gratitude.

I’m grateful:

1. For Clarity. My vision is 20/20. I know what matters. People. Community. Love. And the earth which supports it all. And I know what doesn’t matter. Whether my hair is cut. Things. Productivity and other cudgels of capitalism. Just as I was wondering if humanity is doomed, I got to witness how we can change our collective priorities quickly.

2. For People. I am grateful for family, thick and thin friends, the kindness of strangers, neighbours, delivery people, doctors, nurses, teachers…everyone. I am grateful for the enthusiasms of my community and the skills and talents they have shared throughout the year.

3. For Slowness. I have a brain injury, and I have required a slower pace since 2016. In the before-time, I fought this need. I thought it was something I had to change. I thought that regaining my old pace was a goal and would be a mark of my recovery. Not anymore. I have learned to embrace my slow pace. It’s a relief. In part, I have been able to do this because everyone else had to slow down too.

4. For Solitude. I miss my people. (See 2.) But. (See 3.) I can do things AND be alone. While others complain about life on Zoom, for me (and many other people with disabilities) Zoom means accessibility. I can participate while not having to negotiate so many other things. I can lower the volume, focus on a single speaker, dim the brightness. Sure, real life is better. But having something is better than nothing, and I am grateful for everything I have been able to participate in because of Zoom. I can only hope that when this is over, the avenues of access that have opened so the able-bodied and neurotypical can carry on will remain open for the rest of us. Will every literary festival make on-line access possible? Will readings still be on line? Will I be able to listen to a concert on line or see a show? I hope so.

5. For Breath. Breath is life. The virus makes breathing a struggle and even takes it away. There has been so much death. I have struggled for breath before. I don’t take it for granted. A quarter century of meditation practice has blossomed in this time. Whatever is happening in me and around me, I am here, breathing. When anxiety or worry threaten to overwhelm, I know that some seed of me, some essence of me, is fine. I am breathing. I am fine. 

6. For Conservation. Or whatever the opposite of consumerism is. I am grateful for getting by with what I have. For making do. For repairing things. It is a better way to live. I will never go back. 

7. For Health. This is more than being grateful I have been spared this terrible virus to date. With life so much smaller, I have tended to my health, my total health, in a more focussed way. I have established a new fitness routine. I walk more. I pay attention to what my body and mind need. I am more focussed on health and wellness than ever before.

8. For Support. Whether you call it cooperation, mutual aid, friendship, or neighbourliness, I have been nourished by it this year.

9. For Gratitude. Yes, I am grateful for gratitude. When I’m feeling overwhelmed, I reach for it. It brings me into the present and changes my perspective.

Like you, I’m hoping 2021 is better. But 2020 taught me important lessons. I don’t want to forget them.

 

Paying Writers with thanks to the Canada Council for the Arts and St. Michael’s Hospital

Our book, Impact: The Lives of Women After Concussion has received funding from two sources: the first is St. Michael’s Hospital and the second is the Canada Council for the Arts. I had the great good fortune of distributing the Canada Council funds to our contributors today. We (E.D. Morin and I, and all of our contributors) are so grateful to the Canada Council for the Arts for supporting our work and enabling us to pay creators.

It is hard to overstate how difficult it is for writers to get paid these days. This could be a whole post in and of itself. But let’s stick to anthologies. Here’s something most people don’t realize: typically with anthologies, contributors don’t get paid. Royalties can be shared among contributors, but the math doesn’t make it worthwhile. So the editor gets paid royalties by the publisher and the rest do not.

How much money are we (not) talking about?

I don’t want to brag or anything, but E.D. Morin and I split just over $1000 in royalties for the last anthology we did together, Writing Menopause. I know. You’re underwhelmed. Remember, that represents several YEARS of work. We had over fifty contributors for that book. I give you the numbers so you see the problem. We can’t blame publishers for not wanting to get into this level of paperwork for such small sums. What happens instead is that most writers get paid in copies of the book. Two is typical. Three or more is considered a good deal. It’s better than nothing. But we all know, we can’t trade our books for groceries at the local market.

So when E.D. Morin and I started work on this anthology, we vowed we would find money somewhere to pay the writers. And the quest began. Databases were searched. We consulted with colleagues like Rona Altrows who is on a similar quest to pay anthology contributors and has been successful.

We were turned down by lots of people. It’s hard to get a grant without an organization behind you. There is a process of proving oneself (over and over again) that is difficult and sometimes even demoralizing. It’s the same as looking for a job, and maybe not quite as bad as looking for a bathing suit. At least I didn’t have to do it half-naked and in bad lighting. Anyway, we had to have a lot of stamina. But we get it. There’s no free lunch and anyone giving money out has to know that we can follow through and deliver on our promises. Our success on our last anthology (earnings notwithstanding) helped us to find funding with this project. We had a track record.

And then we found success. First, because of the content of the anthology, we got interest from St. Michael’s Hospital, who have a wonderful and renowned head injury clinic in Toronto and are an important centre for research. They recognized that our contributors were breaking new ground and as a result, they created a research project based on our anthology. And, as part of their funding, they included money to pay our writers as participants in the project. To know that our anthology will impact (pun intended) the treatment of women with concussion is an incredibly positive outcome and we thank, in particular, Dr. Shree Bhalerao and his team for their enthusiasm and support.

Then came the Canada Council for the Arts. Their grant officer was so helpful as I navigated their forms and process. Remember, I’ve got a concussion too, and about the hardest thing for me to do is use websites and fill in forms. When we received notification that the grant had been approved and awarded, we felt not only relief about being able to offer our writers a significant payment, but also gratitude for the recognition that what we are doing has artistic and literary merit. Thank you, Canada Council for the Arts.

It’s not easy, but it can be done. Writers must be paid. Not every project is this content specific. We had avenues of funding that were unique to us and would not be available to others. But we thought about our project in new ways to get where we are today. In the hard times ahead, we are going to have to be even more dedicated to supporting creators.

We can’t wait to share the results of this work with you.

Recovery, Reframing, and Gratitude for 2018

Happy New Year. 2018 will be the year I recover from this concussion. I know, I know.  I said the same in 2017, and that came and went in a concussed fog. Don’t make promises you can’t keep, says someone in the back of my rattled brain. I’m ignoring that person, choosing optimism and saying this will be the year.

When this happened, way back in 2016, I couldn’t have imagined the time between then and now. My former GP told me dismissively that I would recover in three weeks. So I pretended I was fine and tried to carry on. I pushed and pushed until I couldn’t anymore. I remember thinking, “What is wrong with me?” and going into a blind panic amid the clangour.

What does recovery even mean? It’s a process, not a destination. I know now that it does not mean I will be like I was. There’s no going back. Time only moves forward, and so must I. But I will be something else, somebody closer to normal (whatever that is), somebody who doesn’t worry about falling sideways in the supermarket. I hope I’m somebody who can read quickly and deeply again, who can assimilate information, who can remember, who can write creatively, who can think creatively, who can understand a metaphor, who can ride a bike. I hope I am all of those things. And more. I hope I sleep soundly again.

I have been negative about 2017. The lost year, I call it. But it is time for a reframing. I accomplished something. I pursued my recovery. I followed up every lead on practitioners and treatment and completed every treatment plan given to me. I did puzzles and mazes and built with blocks meant for six-year-olds. I memorized patterns and tested my memory in thirty second intervals and two minute intervals and now a little longer than even two minutes. I filled in the pages of cognitive treatment work books. I budgeted my energy, learning over and over from my mistakes. I wore special glasses and eye patches and learned to see again and to focus and refocus close up and in the distance and every point in between. I regained my lost peripheral vision. And I read, doggedly, even when I couldn’t read, even when I had to use a ruler to follow the lines, even when the words swam on the page and pretended to be words they were not. I read something (anything) every day because I knew that to get my life back, I had to be able to read. And I wrote, little bits, tiny posts on social media, or here on my website. They took forever, but I tried to keep my hand in it any way I could. I launched a book, which I could not have done without Elaine (dear Elaine) but it got done. And then after my brain learned to understand my eyes again, I went to driver rehabilitation and got the go-ahead to drive. I still have huge anxiety in the car, but being told that I have the cognitive capacity to drive is a big step forward.

Creative writing is still elusive. The novel, almost finished in January 2016, remains where it was. Novels are big, you know? There’s so much to remember. So much logic and sequencing and so many words, words, words. Reading remains the second-most difficult task I have. To write, I have to be able to read. They are inseparable tasks. I acknowledge that there is improvement. I don’t need a ruler anymore. The words don’t jump around. I can read for twenty minutes or more most days without getting a headache. I still mix up meanings sometimes. I’m still extremely literal. But it is so much better than it was. Now I’m concentrating on concentrating, trying to build my capacity again.

I had (and continue to have) help. Lots of it. I heap special praise upon my neuro-optometrist, who really, truly, listened to what I was experiencing and didn’t look at me like I was crazy. She had seen this before. It was real. I was so grateful. I have a wonderful new GP, who, although she sees a thousand patients, is always able to make me feel like she has time for me. And I don’t want to forget the massage therapists and physiotherapists, a naturopath, a neuro-psychologist, an occupational therapist and a lawyer who helped me navigate the insurance and the crap I need to do to pay for it all. I thank them all.

I spent too much of my time in 2016 and early 2017 pretending I was fine. I wasn’t honest about how difficult it was to see friends or go on a simple outing. Some friends, close friends, knew and understood. They saw me cry, saw me fall apart, saw me have to disappear for a sleep like a cranky toddler. Thank you. People I know who face chronic illness gave me words and insight that helped. I can’t remember the past twenty months closely enough to give you all proper attribution. You know who you are and I am so grateful to you.

I am so grateful for my husband, whose life has also been curtailed by my brain injury. He has been patient and kind and encouraging. My daughter has too. She also had a big injury in 2016 and she was my recovery buddy for a long time. She’s all better now. She visited for the holidays and one day when I was out with these two cherished souls, I completely lost my equilibrium. My world slid down and to the right where I could not make sense of it. It lasted a long time. Too long. It’s a worry. But there they were, unconcerned about abandoning our plans and ready to take me home instead. It’s good to have people in your life who are with you, no matter what.

And I’m grateful for social media too and the friends I connect with there. Last January was a terrible time for me. I was standing at the edge of the abyss. I fought it back. I cannot overstate the value of social media in helping me back away from the darkness. It allowed me to connect with people without actually having to deal with, well, people, and noise and light. It kept me tethered to the world. To all of you who have sent along an encouraging word, thank you.

So here’s to reframing, to 2018, to health, to family, and to friends.

For the record, I started this post January 1 and it is now January 3. Good God. How can it take this long? Oh yes. Reframing. What matters is I could do it at all. I’m grateful.

Tragically Hip: When you know what you’ve got before it’s gone

How can I keep a blog about writing I love without paying homage to The Tragically Hip and Gord Downie?

The Tragically Hip’s last tour, the news that Gord is dying of cancer, the last show—it’s all too much. My tears are real and close to the surface. And I’m not alone. Many of us have a special relationship with the band. It’s not often we know what we’ve got before it’s gone, and this is one of those times.

I went to Queen’s in Kingston (Arts ’85) when the band was hipgetting started. I had the same hair as Gord. I’ve never met any of them, but I’ve been in the same room. I remember an article about them in the Queen’s student paper. In the interview, they were treated like the Beatles. There was speculation about whether one of them was dead. It was smart, funny. I was hooked. I saved it for years but finally lost it in one of my many moves. I was at a show where they played the song “Bedrock,” from the Flintstones. Seriously. They used to do B-sides of Elvis. I’m not sure how many times I’ve seen them. I think I remember that Gord used to keep his back to the audience way back then. It was kind of great. I imagined him petrified, but doing it anyway, getting out there.

After I left Queen’s, I saw them in Toronto, an early show, at the Horseshoe maybe, or Lee’s Palace. I can’t remember. For a while, he lived in the apartment above a friend of mine. I’d visit and see “G. Downie” on the call button and wonder if I’d run into him on the stairs one day. I never did. I’ve seen them in stadiums in Calgary and Toronto. I took my daughter to see them in a hockey arena in Kelowna. No one stayed in their seats. Most of the audience jumped the boards and danced on the floor. When I hear the lines, “Watch the band through a bunch of dancers,” I am back there.

The last time I saw the Hip was in Boston. I’d been living there with my husband and the crowd at the House of Blues was full of Canadians. Every Canadian in a hundred mile radius was there, or at least that’s what it felt like. We wore our Canadian gear, our hockey shirts, our old Hip t-shirts. The House of Blues folks knew this was some kind of Mecca for us, although they didn’t quite get it. Their songs tethered me, tethered all of us, to home. They made me feel like myself again.

Some lyrics are more poignant now than ever. “You can’t be fond of living in the past,” or “Lower me slowly, sadly and properly, Get Ry Cooder to sing my eulogy.” I love that song. Every time I drive across the country and I leave the Shield and come over that rise on the TransCanada to the Prairie (you know the one) I stop the car on the side of the road, sit on the hood and blast it. In the old days, I’d have a smoke too. Not anymore. Those things cause cancer.

Other lyrics, even the name of the band, have new meanings since the news broke and these new meanings hit hard last night. Context is everything, right? Lines like “Nothing’s dead down here. It’s just a little tired,” and “Tired as fuck.” Yeah. I bet you are. It showed, of course, but it doesn’t matter. “I’m total pro. That’s what I’m here for,” he sang. And he is. “Every day I’m dumping the body,” was a gut punch for me.

One song that didn’t change in meaning for me was “Scared.” I used to listen to “Scared” over and over again when I had cancer. The “I” in the lyric was sometimes me, sometimes cancer. It became a constantly shifting confrontation. I used to go into chemo humming, “I’m not prepared. But if I have to.” Hearing Gord sing it last night was, for me, the emotional centre of the concert.

Thanks for the last memory Gord, the last concert, the epic effort you put into it. Thanks, to you and the whole band, for the last thirty years. I’m not prepared, but I guess I have to. I’m pretty sure you feel the same way.  So do we all.